Epidermolysis bullosa (EB) is the name given to a few genetic diseases causing fragile skin. Because the skin is so fragile (tender) it can be injured easily and cause blisters to form. If these blisters become infected, they can cause serious problems. Some people will have a few blisters, others will have a lot. The blisters are most often found on the feet and hands, but can form inside the mouth, the oesophagus (the tube that allows food to go from the back of the mouth to the stomach), in the stomach, and the bladder. More severe EB can be found in the teeth, nails, hair and other parts of the body.
Epidermolysis bullosa happens when one of the important skin structures is decreased or totally missing. The loss of this skin 'glue' makes the skin weak.
Currently, there is no cure for EB. Many types are well controlled and many patients with EB lead normal lives. Unfortunately, there are several rare types that can cause death in infancy, or early adulthood.
http://www.rch.org.au/kidsinfo/fact_sheets/Epidermolysis_bullosa/
Epidermolysis bullosa happens when one of the important skin structures is decreased or totally missing. The loss of this skin 'glue' makes the skin weak.
Currently, there is no cure for EB. Many types are well controlled and many patients with EB lead normal lives. Unfortunately, there are several rare types that can cause death in infancy, or early adulthood.
http://www.rch.org.au/kidsinfo/fact_sheets/Epidermolysis_bullosa/
On April 28th, 2014, .twenty13.
will be releasing these exclusive item for the
EB (Epidermolysis Bullosa) Event to raise funds and awareness.
This exclusive item will already be at 50% off the original price of 400L$ and 50% of those proceeds will go to the DEBRA foundation.
With 6 awesome designs to chose from you will be ready to hit the beach this summer.
will be releasing these exclusive item for the
EB (Epidermolysis Bullosa) Event to raise funds and awareness.
This exclusive item will already be at 50% off the original price of 400L$ and 50% of those proceeds will go to the DEBRA foundation.
With 6 awesome designs to chose from you will be ready to hit the beach this summer.
Check out .twenty13.'s blog for more great buys you can get at the event.
http://twenty13store.blogspot.com.au/2014/04/pay-it-forward-eb-awareness.html
Be sure to come and help support such a great cause.
hugs Ally
http://twenty13store.blogspot.com.au/2014/04/pay-it-forward-eb-awareness.html
Be sure to come and help support such a great cause.
hugs Ally
.t13. *Mesh//FitMesh* Summer Outfit - Cupcake
.t13. *Mesh//FitMesh* Summer Outfit - It's Summer
.t13. *Mesh//FitMesh* Summer Outfit - Malibu
.t13. *Mesh//FitMesh* Summer Outfit - Sunshine
.t13. *Mesh//FitMesh* Summer Outfit - SunTan City
.t13. *Mesh//FitMesh* Summer Outfit - Woodstock
Pics take at Image Essentials-The beach
http://maps.secondlife.com/secondlife/Parameshvara/128/139/1003
.t13. *Mesh//FitMesh* Summer Outfit - It's Summer
.t13. *Mesh//FitMesh* Summer Outfit - Malibu
.t13. *Mesh//FitMesh* Summer Outfit - Sunshine
.t13. *Mesh//FitMesh* Summer Outfit - SunTan City
.t13. *Mesh//FitMesh* Summer Outfit - Woodstock
Pics take at Image Essentials-The beach
http://maps.secondlife.com/secondlife/Parameshvara/128/139/1003